Monday, November 5, 2012

Well,,,,,,,,

I don't know what to say......I never got sick,,,.I'm still having little fevers,,,,,and have been having chills too,,,,,,,,,,a little itchy-ness,,,,,,,the side of my face,,,actually my jaw is swollen,,,,on down into my neck,,,the lymph nodes in my neck,,,,,don't know for sure, what is going on.   Glad I went ahead and got that flu shot,,,,,,,also just got a DPT and a shot for shingles.   So that should take care of what ails ya.  ha  Have had several mean night sweats lately, too.  Dr Shadowen suggested the DPT shot,,,he said it seems like whooping cough is making a come back, and if I would be around any kids to be sure and get one,,,,and then Tiffany said her obgyn told her any one that would be around the baby much should get the shot,,,,so thought it would be best to get it,,,and while I was there, I got one for shingles also.   Now, I have already had the shingles once,,,,but my cancer Dr said I could possibly get them again,,,,,,and I was soooooo sick then,,,,so don't want to go that route again,,,,maybe the next time,,,,,well hopefully there wont be a next time.  The shot will last a lifetime,,,,,,so still dont know what is going on,,,,still waiting for more symptoms,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

Tuesday, September 25, 2012

Happy Birthday Ronnie,,,,,,

up in Heaven,,,,,would have been 63,,,,,,,,he was 3 months older then me,,,,My birthday is in January.  He'll be gone 11 years in February,,,,,,,,,where has the time gone?   The things that I would love to discuss with him,,,,,,,,,,tell him,,,,,,,show him,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

Saturday, September 22, 2012

Busy day for sure,,,,,,,

for a sick person,,,,,,,,emptied dishwasher,,,,washed a few dishes,,cleaned up the kitchen, made bed,,,,,swept garage,,,,rode my bike around the circle,,,,
(twice) ,,,,,,pulled weeds around the borders in front of house,,,,,,trimmed the shrubs,,,laid some mulch around the shrubs on side of house,,,,raked all trimmings up,,,,laid the rest of the mulch in back yard,,,,,,,,,,,,hmmmmmm   Does it sound as if I'm sick????  Maybe tomorrow it will hit,,,,,,,,,,,,better wash the van first,,,,,,,,,,

Thursday, September 20, 2012

Something Viral,,,,,,,,,,,

she says,,,,,,,hmmmmmmmmmmm  but I'm not sick,,,,,,,,,,  Went for a 3 month checkup today,,,,,thought everything would be fine,,,,,,,,,,,,,the only complaint I had was of feeling feverish,,,,but thought it was probably mild hot flashes,,,,,,(never occurs to me to take my temp,,,,it is always 96 or 97, that's the norm for me),,,,,,,,come to find out I had a low grade temp,,,,,,,,,hmmmmmmm  My white cells have climbed to 20.8,,,WOW,,,,,,,,a  normal high is 10.8,,,,,,,,3 months ago it was 14,,,,,,,,,,,,hmmmmm   lymph count is 17.9 normal is 2.9   hmmmmmmmm   but she really thinks it is just something viral,,,,but I'm not sick,,,(so far)  so I guess it is wait and see,,,,,,meanwhile I don't want to be around anyone just in case it is,,,,,,,,,,,,,and then again it could be the cancer surfacing,,,,,hmmmmmm  I am feeling pretty good (for me)  Platelets were 63,,,,,,that's normal for me,,,,normal low is 130   hmmmmmm  When I was diagnosed 14 years ago my WBC was 24,,,,,,,, almost back up there,,,,,it was 54 when I took chemo,,,,sure hope that is not the case for me,,,,,,hmmmmmmmm  Will keep you posted,,,,haven't had the flu shot yet,,,,,,,,and if it's something viral,,,quess I shouldn't get it yet,,,,,,,,,,,,,,,,,,,,,,, Into every one's life, a little rain must fall,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,just hope it doesn't create a flood,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,

Monday, May 21, 2012

Thumbs Up!!!!

Well,,,all is well,,,still doing good!!!!!  Still have quite  a bit of pain but nothing compared to what it was before surgery,,,I have healed exceptionally well,,,,,and the iron that I took,,,,I can finally feel it,,,,,I have been having some really good days,,,,,,,,wish it could stay like this,,,,,,,looking forward to summer,,,,,I visit the cancer Dr,,,in a few weeks,,,expecting a good check-up........Hope everyone has a good fun filled summer,,,,,,,,,,,

Monday, March 26, 2012

Good News, Bad News,,,,,,,

visit with Dr Seshradri, cancer Dr,,,,,the iron worked for the white cells, especially the neutraphils,,,,it raised them considerably, (since these are the cells that fight infection,,,that is a very good thing),,,,,but then on the other hand,,,not so much for the platelets,,,,,they are still at 52,,,,and normal low is 134 ,,,,so 52 is real a shortage,,,,,,but I feel pretty good and there is no bruising,,,,so that is a wonderful thing,,,,,,,so I am to return in 3 months,,,,in the meantime,,,if anything comes up,,,I am to call her,,,,,,,,,,wished it had been better.  Of course,,,the protocol is to take out the spleen,,,(ugh),,,,she said sometimes this works and platelets go back to normal,,,,but then again,,sometimes it doesn't,,,,,,and then you don't have a spleen,,,,she says the spleen is eating up the platelets,,,,,,,,(what to do, what to do,,)????  Fortunate for me,,,I have not been sick all winter,,,,,,,,,,and hopefully will stay that way....,,,,?   hmmmmm

Thursday, March 22, 2012

Good Going Doc,,,,,,,

visit with Dr Fee ,,,,it has been 2 1/2 months since surgery,,,,,,,,and everything is great!!!!  Who would have thought?   Never got an infection,  (which I was sure I would,,,given the immune system being what it is).  But with Dr Fees help and  Dr.Rebecca Shadowen's given lots of antibiotics,,,and Dr Seshradri lots of iron,,,,and the grace of God,,,,we made it through.  Dr Fee is well pleased and said I didn't have to come back for a year,,,,YEY!!!  But there is still pain and lots of it,,,,not like it was before surgery,,,,just an aching pain,,,,but it feels better when I am active like riding the bike or walking,,,,,when I am at rest,,,there is pain,,,,wonder if it just the weather or if this is just the way it is going to be.     Will have to admit that it is still better then the terrible pain before,,,,,,,,,,,,,,,,He said to keep up my therapy that I am doing at home and it will take 6 months to a year to completely recover,,,,,hmmmmmmmmm

Wednesday, March 14, 2012

No More Therapy!!!!

Today was the last day of therapy,,,,,I have been pulling 120 (degree of motion) for over a week now,,,so that is good.  But they tell me to keep up the exercising at home for about a year,,,(oh great) to keep the knee from freezing up,,,(even more great!)  Nobody told me this,,,,,,,,,I see the Dr next Weds,,,,so we will see if he is pleased with it.  The knee still hurts alot,,,but nothing like it did before surgery,,,,I'm hoping it will get better with time,,,,,,,,and I will adjust better,,,,it has been a big ordeal for me,,,,,,,

I also had taken the last dose of Iron for now,,,I also see the cancer Dr. next Thurs,,,,we are hoping this iron raises the platelets and my white blood count,,,,hoping,,,,hoping,,,hoping,

Sunday, February 26, 2012

Ten years ago,,,,,

today,,,was the day Ronnie passed away,,,,,,where has the time gone?  Alot has happened,,,,,alot of changes,,,,,,I'm not the same person I was then.  Things happen that change you,,,,,,,and you can't help it.  But,,on a brighter side,,,,,,,he is far off better than me,,,,or any of us,,,,,,,,and one day,,,,,yep, one day I will get to see him again,,,(Look for me,,,,for I will be there too).

I am still receiving iron by IV on fridays,,,maybe this friday will be the last of it,,,,,and I pulled 112 last week at therapy,,,,closer to 120,,,,maybe it will come this week.  The knee is doing well,,,,the muscles behind the knee hurt alot,,,,I think that is due to the fibromaylgia,,but even that is getting better.  But I think I am still getting feeling back in the knee that makes it hurt.   Wonder how long it will take to get all the sensations back?  Or will I ever?  hmmmmm  We shall see,,,meanwhile,,,,need to go ride my bike,,,,,,,,,

Tuesday, February 21, 2012

108*

degree of motion  yesterday at PT,,,,,,,way to GOOOOOO!!!  Maybe soon I will make 120*  Check up with Dr Shadowens was pretty good,,,A1c was 5.5,,,,that is real good but cholesterol is still pretty high,,,liver counts are excellent,,,,,,,he added Zetia to the already taking drugs,,,,,hope it helps.  I see Rebecca Shadowen on thursday,,,,wonder how things will be with her.........As far as I know,,,,no infections,,,,yey me,,,,,,,,,

Wednesday, February 15, 2012

Almost 6 weeks,,,,,,,,,

well,,,on Friday it will be 6 weeks since surgery,,,,,and still doing well and no infection,,,,just can't believe it......the knee looks great, all healed and staples all out.....the bruising is gone except for a little yellow bruising still. Today I got 102 degree of motion,,,that is good but still have 120 to get to,,,but they tell me it will come,,,,I'm looking forward to it. Thanks to Dr Rebecca Shadowen for giving me so much antibiotic that I didn't get an infection,,,,thrush yes,,,,,but no infection of the knee. Since the bone marrow test showed no iron stores,,,,,De Sishardri says I need more iron,,,,so on Friday I will receive more iron by IV,,,I did last Friday also,,,,will do this for the next 3 Fridays. She said this will help with the healing process and the platelets and overall picture,,,, should help. Looking forward to this,,,,but,,,,not looking forward to the leg cramps that followed last weeks treatment,,,,hey,,,,but it will help the cause,,,,,got some terrible bruising from the stick,,,,wonder what the platelets are doing,,,,might ask for a CBC to see what is going on. On a good note my A1c was a 5.5 that is a very good thing,,,,Dr David Shadowen will be glad to hear of this,,,,I see the endocrinologist on Friday.

Going to try and go back to sewing class tomorrow,,,,will miss my good friend Joann,,,,,but will remember all the good times we had. I had so many things lined up to sew,,,,,,but it has been very hard to focus on anything other than my knee,,,this has really surprised me. I found it hard to set so many times,,,but it is getting better,,,,the cane and walker are gone, that is a good thing,,,,,just waiting for the muscles in the back of the legs to finally heal.,,,,,Wonder how long that is going to take,,,,,,,,,,,,,,,,,,,,,,,Hope everyone had a good Valentines Day yesterday,,,,,,,,,,,sure miss my Valentine,,,,,,,,,,

Tuesday, February 7, 2012

R.I.P. Joann Smith,,,,,

my dear friend that helped me so much on the creation of the wall hanging has passed away,,,,,I will miss her greatly, especially at our quilting meetings. I learned sooo much from her about sewing techniques, she taught me how to use my New sewing machine,,,many good conversations about gospel singing and preaching services and life in general,,,,and we shared a monster of a disease,,,hers with lung cancer and of course mine with CLL. Needless to say we had alot in common. Since we have started our sewing meetings,,,JoAnns health has continue to deteriorate,,,,and now it has spread to her brain,,,and was taking some radiation treatments. Of course to no avail,,,,she didn't get better this time and she passed. It truly is our(my) loss and heavens gain. She's probably teaching everyone how to quilt in heaven,,(tears, tears) RIP my friend Joann.

Saturday, January 28, 2012

If I only knew,,,,,,,,

that knee surgery would be soooo rough,,,,I would have taken better care of them.  Today is day ten,,,,and not so good of a day,,,,was up most of the night,,,,,,,,in so much pain,,,,I'm determined to get off the pain meds,,,,,,,,and didn't have any for two day,,,,but PT with home health was pretty grueling yesterday,,,,and I should have taken some meds,,,,but didn't ,,,so I paid for it by getting no sleep.  Therapaists say I am doing well,,,,,,,,,I know I am getting around well,,,,but still can't bend it all the way and I have terrible bruising all around it.  I will have to say that the knee itelf is looking good,,,and,,,,no pain,,,,it has about 20 staples still in it,,,,but I suffered so much pain before surgery,,,it's good not to have any now.  But the pain is where the muscles were tampered with and where the tourequet was.  They say I will have full use before long.  We'll see. 

Today is my 62nd birthday,,,,Happy Birthday to me,,,,never thought I would live to see 62,,,,,,,I thank God for each one that he gives me.  I feel very old today,,,,wonder if it can be because of no sleep issue last night

Thursday, January 5, 2012

Down to the crunch time,,,,,,,,,,

Well,,,todays the 5th,,,,and tomorrow is surgery on the ol knee,,,I sure do dread it.   So much can go wrong,,,,,,,,,,,but sure hope it feels better,,,,I have really been in a lot of pain lately,,,,,,but I have a high tolerance to pain anyway,,,,,,,,,all this pain and no medicine,,,,so that's a good thing.  I have laundry done up,,,,house is all cleaned,,,,refridgerater cleaned out, garbage out,,,,almost all packed,,,have to take enough pajamas for hospital and Sky,,,,,,,bills all paid,,,,,,dogs food is out for the week,,,,looks like I have thought of everything,,,,,,,now,,,to get a prayer though for God's watch care,,,,,,,odd how we always leave him to the last?  But we know he already understands and knows our needs before we do.  Talk to you after surgery,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,