Almost done,,,,,,,,

only 5 more treatments and we will be done. I will miss all the nurses up here, it is called "Private Referral",,, here at the Medical Center......wonderful, wonderful care,,,each nurse has great personality and gives you excellent care,,,I have been very pleased. But, for my part,,,will be glad when the trips to BG will end,,,I am not getting anything done at home,,,,,ah,,,,I will have to take that back,,,,I did manage to finish Jacobs quilt for his birthday,,,,and Hannah's is almost done for her BD on the 1st...I'm talking about, mowing the grass and weed eating,,,,the hard work stuff. I was afraid to do any of it at this time,,,because my pic line is still oozing some and was afraid to get some sweat under the bandage on the gauze,,,and cause some infection,,,,a,,,,,, like I have enough of that going on already!!!

Will posts some pictures of the quilts later, when I am at home with the printer, right now I am still at treatment.

Monday I will have an appointment with Dr Young,,,,surely, surely no chemo at this time,,,,I have had enough anti-biotic to kill out leprosy!!!! Surely my blood work should be clean if not sterile!! ha ha Will let you know what he says on Monday,,,this is a two month appt.

So Far,,,So good,,,,,,,,

Don't know what to tell you,,,,so far it looks like I am responding to the meds, the creatinine is good and the vanc.omycin,TRGH is good, (it's not toxic),,,but I am having alot of pain in the toe,,,,maybe this anti-biotic is scattering the infection,,,and that is what's causing it,,,,,,just don't know. Still have to go till the 1st of September,,,,it's almost over.

Yesterday was a little hectic,,first thing after I drove in, got out, shut the door, and "what",,,,"no keys",,,I had locked them in the van,,,,,,,(Great,,,,,right when I was meeting friends for lunch),,,I sign in for treatment,,,this can sometimes take a while,,,,,I call my friends and tell them my dilemma,,,,they say that's okay,,,we'll pick you up and worry about that later,,,,,,,,(why didn't I think of that?) So they pick me up when treatment is over and we head over to Buckhead's and eat (Yummmmm--my!) I call AAA as we leave and then meet AAA back at the hospital and it didn't take him 5 minutes to unlock it,,,I need to carry one of those in my purse! I then get it on home,,,,,,long day,,,,,My good nurse friend Annette (Jeniece) took care of me again today,,,always a good day when she is my nurse (and good conversation ( I sang at her wedding many moons ago)

Still have to work on Jacob's quilt for his Birthday,,,,he will be seven years old ,,,,a precious little boy,,,he reminds me so much of Ronnie,,,he always has something to say about everything,,,so witty,,,and most everything he says is always sooo cute,,,,,never at a loss of words, just like Pappaw Ronnie,,,ha

Going to see about taking my treatment about an hour early tomorrow,,,,maybe I can come in at 8 instead of 9,,,,and then the hour trip home,,church doesn't start until 11,,,,yep I believe we can do it,,,,,if they will just let me,,,,,,,,we'll see....

Please feel free to leave me a comment, question, or just to let me know that you are reading along from time to time,,,Love you all,,,,and thanks for all your prayers and support...

A Yucky Day for sure,,,,,,,

What a yucky day it has been,,,,,,,I am just off today,,(of course, some would say I am off everyday!) I feel totally out of it,,,,the nurses said that such a massive dose of anti-biotics can make you feel bad,,,,I have done well until yesterday,,,,and today is even worse! Jonathan took me to my treatment, even though I tried to get him to stay home,,,his allergies were really acting up. And then I went back to his house and Tiffany (his girlfriend) came over and he made pizzas which were yummy! Always yummy when someone else fixes for you. I don't have a fever even though I feel very hot, and the arm hurts some. The old chest is pounding away, too! They are having to change the covering on the pic line every day, even though it is supposed to be changed every 7th day (because of so much blood pooling up under it,) and the platelets are so low (65). This causes concern, because they can't keep it as sterile as it needs to be, a greater chance for infection. (just what I need more of) A long ways to go yet,,,the swelling of the toe is actually decreasing but the pain in the toe is as bad as ever,,,just don't know if the Dr can save it or not.....

Troubles of this life come by,,,,,,,,,,

and burdens, get u down-you think no one is listening, you,think no one is around. Just remember what his word says, Trust him and obey. Keep your eyes toward the heavens, cause help is on the way.

Just hold hold a little longer,,,help is on the way. A brighter day is coming for those who believe and pray. Help won't help tomorrow--if you give up today,,,Just hold on a little longer,,,,help is on the way.


If I didn't believe this,,,I wouldn't write it,,,,it has really been depressing today,,but I wouldn't have wrote it, if I didn't believe that, "help is surely on the way!" Please Lord don't forsake me,,,let there be help on the way,,,,,,,,,,,,

It's Still working!!!!!

I had blood work done today and still good results and the dosage is still the same,,,,,,,and I believe (I'm afraid to speak too soon) that the toe's swelling has gone down just a tad,,,I'm so glad,,,I was beginning to think it wasn't making a difference,,,but I believe it is,,,it still has pain though,,,,,they also changed the dressing, (yuck)and it feels better,,,,,but looks horrible,,,,bruises everywhere,,,,but they too will heal and blood still oozes, (yuck again) Will go back tomorrow for another dose,,,,just like the energizer bunny,,,I just keep on ticking,,,,,,,,,

Good News!!!!!!!

Well,,,,,,it's Good News,,,Good News,,,,,Good News,,,,,,(guess you can tell I'm a little excited)! Went to Dr Rebecca Shadowen,,,infectious disease specialist and she was pleased with the lab results of my toe,,,,,GREAT!!!!! That means the anti-biotics are working,,,,,Great, Great,Great!!!! Bad thing is,,,,,,,,I have to take the drugs another 21 days though,,,,,,,oh, well,,,small price for keeping your toe attached. That's 21 straight days,,,that means 21 days of going to BG and taking the drip,,,,But,,,,I changed the time from 1:00 to 9:00am,,,,I'm just not getting any thing done around here,,,,so this way I can get right out of bed,,,and head on down there,,,get it over with,,,come home,,,a little nappy-poo,,,and get at it. Hopefully, this will work,,,I still need to can some maters. Thanks to all who remembered me,,,,,God is still good,,,,,,,,,

Treatment #6,,,,,,,,

went as planned today,,,,,,no problems. #7 will be tomorrow after seeing the Dr first,,,,,,can't even imagine what she will say,,,no changes can I see,,,,,,The dentist called,,,,they had a cancellation,,,,so I went and he took x-rays,,,he couldn't see anything that would be causing me pain,,,,he did say that I could be grinding my teeth in the night (I did that during the chemo,,,he had to make me a mouth guard to prevent that) and that I had one tooth that was a tad longer then the others so he shaved it down some to maybe counter that effect,,,,we'll see,,,,right now it still hurts,,,,,he also said I could of had an abscess (due to the immune system) and that the antibiotic is taking care of it,,,,,,,,not sure,,,wish I was a Dr. It doesn't hurt as bad as it did last week but it still hurts,,,,,Hope I get good news tomorrow,,,,,wonder if it's not better if they still want to do a biopsy? Thanks to all my good friends and family that have been "reading in" and tracking my blog,,,your encouragement means "lots" and so does,, your prayers,,,,you know I have been sooo frighten of this infection,,,,my Mom passing away with sepsis,,,,,this whole thing has been very scary,,,,,,,,I luv you all,,,,,,,

Treatment #5,,,,,,

is over and done with. Jonathan took me to my treatment today and stayed and visited and brought Subway's for us,,,,yummmmmm. Another 3 hours,,,,,,,,Jonathan happened to take his laptop and I watched, "Day after Tomorrow" and he watched my TV,,,,Cubbie's played today. Church this am,,,made for a ve----ry long day,,,and I am going to bed. Two more treatments,,,then I see the Dr,,,,,,everything I read on internet says 6 weeks of IV antibiotics,,,,,,maybe she has to see how it is healing and possibly needs to change meds,,,,,,so far it doesn't look or feel any different,,,,,,the net says the staph infection doesn't respond to all meds,,,you have to find out which ones,,,,,so we'll see on Tuesday,,,,,,,,,patience Lord,,,please give me patience,,,,,,,,,,,,

One more Valley,,,,,,,,

one more hill, maybe one, more trial, one more tear, one more curve in life's road, maybe one more mile to go,,,,,,,,,you can lay down your heavy load,,,,when you get home,,,,,,,,,ever heard that song???,,,,that's an oldie, the trio used to sing many, many years ago. You all will probably get tired of me singing to you,,,,but there's always a song on my heart,,,,,,,if the Lord ever gets tired of fooling with me,,,I'm sure he will quit sending the songs,,,,,so I'm very thankful,,,"He's Still Working on Me",,,,,,,another great song!

Jason went with me for my treatment today,,, was so glad to have his company,,,it was longer today because they upped the dose and you can't give it too fast,,,so 3 hours,,,whew,,,makes for a long day, especially with the hour trip to, and hour trip back home!!! We got a room with no TV,,,,,BORING!!! was so glad we took the laptop,,,,,it entertained Jason for a while. A good friend was my nurse today,,,,Annette Sanders, Bro Keith Sanders' wife,,,,,it is so good to have such skilled people, who are good at what they do, and put a special touch on things. Was good to be able to visit a while too. This is some pretty potent anti-biotics,,,,just praying it does the job,,,, small price to pay,,,if it will just do the job!!! Church tonight and tomorrow,,,,Hope Pastor JC Ramsey takes it "easy" on us this weekend,,,,kinda tired,,,,,,,,

Would you believe the dentist finally called yesterday??? They had a cancelation and wanted me to come in,,,,couldn't fit it into the schedule of events,,, still have the appt on tuesday,,,just hope my treatment is over in enough time to go,,,,,i'm still in pain,,,but not as bad as it was,,,,,,

Lord, it's just another hill,,,,,,,,

that i'm climbing,,,,,
Lord, it's just another tear to wipe away,,,,,,,
if I an just hold on, a little longer,,,,
I'll be rejoicing in Heaven some day.

When my troubles and trials gather around me,,,
and it seems, I'm in this valley all alone,,,,,
then I feel his arms all around me,,,,,,
and praise God I know, I'm going home,

These are the words to a song that Bro Gerald Skaggs used to sing all the time (how I miss him)I thought of this song so many times today,,,,,,,first on the agenda today I saw Dr Rauh, the liver dr and he said everything is looking good and numbers are up and some are down,,,,that is wonderful! Next,,,I am to be at the diagnostic and imaging at the MEdical center so they can put in my pic-line for the treatment,,,,,,,whoooo,,,,, they are not going to put me to sleep,,just going to numb it real good. had to use an ex-ray to guide it,,,,now we have it in,,,hurts a little,,,,they clean it up,,,and then I walk over to the other side and get my treatment,,,,,they take some blood and they are going to test it to make sure that I don't have too much of that drug or it could be toxic,,,,it come back,,,I didn't have enough,,,,so, tomorrow we will up the dosage, (oh boy) Will have to wait and see and then go from there. I hope to tomorrow is a whole lot better,,,,,,,,,,

Must of had something to do with the full moon, I was pretty wimpy and weepy today,,,and it really shocked me,,,,,while they were doing the surgery,,,,I couldn't keep the tears back,,,,,for no reason,,,,,,I kept choking them back,,,until no one could see and then I would cry,,,don't know why,,,,,,,,,,,,well,,,,,maybe,,,,just maybe I missed my sweetheart,,,,,,,now if he could be here he would,,,and he would hold my other hand and be jokular so I wouldn't pay any attention to what was going on,,,,,,I miss my man,,,,,,,tears tears when it gets quiet,,,,I'll go ahead and have a good cry and get it overwith,,,,,so I can move on,,,,,and not look back. I hate weepy days,,,,,,,,,,,,,,,,,,,and it's such a beautiful day,,,,,,,,,,,church sat and sun and treatments both days,,,going to be on the road alot.

yuck,,,,,not feeling too good,,,,,,,,,,

Don't think it's the anti-biotic,,,,,,,got a toothache,,,,called the dentist and can't get in until next Tuesday,,,wow,,,,had to find some PAIN medicine,,,,it's been a yucky day,,,,,between the orgel, and Advil,,,yuck, yuck, and double yuck. A cavity under a bridge,,,,I guess the bridge has been in there for about 25 years,,,,and probably time for a new one,,,,gosh,,,they are so expensive!!!! But this, I don't need right now,,,got enough going on,,,,,,,The IV treatment went as well as can be expected,,,,had to be stuck twice,,,,and they left the pic line in,,,so hopefully I won't have to be stuck tomorrow,,,,unless it blows.....we'll see. My jaw really hurts,,,,going to hunt for something stronger then Advil,,,,,,,,,,,,,,,,

Well, here we go,,,,,

Dr Rebecca Shadowen called today and said we would start anti-biotics tomorrow,,,,,(great) by IV at the Medical Center as OP,,,this will consist of 2 differ anti-biotics. We will do this for 7 consecutive days and then come back to see her and see if we have made any progress.. Each treatment should be for 1 1/2 hours,,,,,, (a trip to BG, everyday for 7 days,,,golly gee,,,and Saturday and Sunday also) Sure hope this works,,,When she first started talking she said, "Do you want to do IV antibiotics are get rid of the toe? There's no question about it!!! Most diffidently, try to keep my toe!!!! (to her I'm sure it is just another toe,,,,but to me,,,,,well, it's my toe,,,,,,,MY TOE!!!!! I'm looking forward to starting on these treatments and sure hope they work,,,remember I have been on an oral antibiotic for going on 3 weeks now,,,,I hope that has given me a jump start on it all,,,,even though,,,if going by the pain that I have in the toe,,,,,,,,,,,it is NO better. I'll keep you informed on the progress but will probably not know anything for at least a week.

Gonna be a few more days,,,,,,

before I know about the toe,,,,,,,Rebecca Shadowen said we have 3 options,,,,2 different antibiotics to take for a month, 2, get a biopsy of the toe, and do a culture so we will know exactly what we are dealing with and of course 3 the dreaded one,,,amputate the toe.....Not crazy about that ideal,,,,,,BUT,,, she did say I should be okay with it since it is not a balancing toe and one that I really needed,,,,hmmmmmm...Just not sure. She wanted to check with the cancer Dr, Dr Young, before proceeding with this, to make sure we had efficient time to do this before chemo, but he is on vacation this week so she said she would call me on Monday and let me know about it all,,,,so this is where I am at and to ponder on it alllll weekend. You wouldn't know anything was wrong with the toe, other then the toenail is enlarged quit a bit. But there is considerable amount of pain in it, (that's what lead me to the Dr, in the first place) The Dr said the bone was just gone,,,,,,deteriorated,,,,,I guess ate up by the infection,,,,and of course if I don't see to it,,,,,,,,,,,,,,,,,,,,,I don't even want to go there yet,,,,,,,,,,,,,,,,,,,,,,,,,,And you ask where did I get the infection? Could have been anything,,,a UTI, insect bite, ear infection,,,,,??? I had some kind of infection of some kind,,,,and got this. What a great immune system that I have,,,,that keeps on giving,,,,,,,,,,,,,